Masquerade for a Cure

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Masquerade for a Cure 2013

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Still Alive & KICKIN it, lol!! Chemo & MD Update From Yesterday

Back to blogging again and have lots to catch up on with treatment, life, etc……. Late night yesterday at MD, but got home around 9 pm which is actually earlier than most chemo days!! Volunteer services stopped by to say hello and see if I wanted a hat, pillow, etc….. There are 3 ladies that always man the cart and they are always so wonderful to talk to. I included a picture of my newest hat, which reminded me of Jamaica because it is super colorful. Then that lead the volunteers and I into a conversation about the Jamaican bobsled team, which unfortunately I missed on tv I made it home in time to say goodnight to my daughter, who was wearing one of my hats that I was given by the volunteers previously She tried to take my new colorful one but told her she could borrow it anytime as long as her hair was dry (hair was still damp from her shower). Woke up today and was a little more tired than usual, but headed to the Jamie’s Hope office anyways to work with Amanda and Samantha today. Always fun working up there and so thankful for all of our wonderful volunteers that none of this would be possible without. Amanda, our volunteers, sponsors, MD, etc… keep me motivated and trust me when you have been on chemo this long you need all the motivation you can get, lol (and family also). I plan on posting some of my past photos and updates as I have time, have soooo much to update and talk about and just...

PET Scan Results a little disappointing :( – FUNKY HAT / Getting my Christmas Cocktail yesterday “aka” Chemo

Yesterday was a loooooooooong day, just now finishing update for yesterday. First appointment at 9:30 am (labs), got there around 12:00 since first doctor appointment was at 1:30 pm…. Then left at 10:37 PM… Picked up angel tree items I had on hold on the way home….. Arrived home right at midnight finally!! I received my PET Scan results yesterday, included picture of my report below. My last scan we received positive results (first week of November) and the decision was made after our discussion that we would try doubling my chemo (same overall dosage) but I would not come every week. Yesterday was my first scan since trying this and many of my tumors SUV (activity level they use for monitoring my cancer) increased and in the report a new area of concern to watch was mentioned My last several scans reported stable but the SUV level was going down on a very slow decline and this was the first scan in a long time that went significantly the wrong way. We are giving it 2 more months until my next scan and if it does not improve then back to every week. The last 1-2 months of my life have been some of my most stressful months over the past year, so praying that stress played a role. Poor Amanda, our Executive Director communicates with me almost everyday due to foundation and we have been friends forever so she has to listen and deal with me, lol. What many people don’t realize, when I don’t blog I am not always doing to good. On top of my...

Texans Fans at MD Anderson

Just in case anybody was wondering, here is a picture with the 2nd Biggest Texans fan at MD Anderson!! Of course I am the #1 fan, lol Jewels has been taking my blood for almost 2 years now. When I first started getting my labs drawn with her I was a complete wreck. I was extremely nervous, once I took a whiff of the alcohol pad after they prepped my arm for the stick it was all over and then I was hyperventilating, near fainting…… just the anticipation of the blood draw gave me extreme anxiety!! Even at 31 (was actually 30 at the start of chemo), a grown woman turned into a 5 year old and if I happened to be lucky and my Dad was there I would hold his hand every time (maybe correct word is squeeze) Jewels is so good she would stick me and I could hardly feel a thing. As time went on I got to the point where I trusted her 100% and now I never have anxiety like before. I actually look forward to seeing her for my blood draw and talking about our Texans. ~...