Masquerade for a Cure

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Masquerade for a Cure 2013

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Recent Blog Posts

Learn from the top thought leaders in the industry.

Blood Clot

At MD Anderson today with Garrick to see Cardiovascular Surgeon. After discussing the clot busting procedure with the doctor we all decided I am going to try to manage the pain for the next 2 weeks and hope for improvements. The procedure risks are bleeding in the brain and you also have to stay in the ICU after the procedure. If things do not get better we discussed moving the location of my port. My clot goes from about 3-4 inches above my elbow area to all the way to the port which is in my right upper chest area. Hoping after another few weeks of my daily blood thinner injections it will begin to improve. We are also adding Celebrex back in and I am hoping it will help with the inflammation. ~...

Deep Vein Thrombosis

I was called in this morning to MD Anderson to evaluate my port area after my chest X-ray from Wednesday came back normal. I have been doing my daily Fragmen injections for almost 2 weeks and things seemed like they were getting better. This past Sunday I started having pain which progressed into severe pain. I can barely put a shirt on because it hurts to move. Pain medication helps a little, but it is still very painful to move my right arm and shoulder area. The pain is in my port area, underarm, right upper back and right shoulder and a little below. I have tenderness in my right lower neck as well, swelling and bulging veins. It sounds bad, but as long as I don’t move around too much I am doing okay :). After my assessment today, I am being referred to a Vascular surgeon. They are going to do a procedure called Thrombolysis also known as clot-busting. I meet with the specialist on Tuesday at MD Anderson. I am a little nervous about the procedure, but am happy to know this will likely improve my condition....

Thanksgiving Day

Just wanted to take a moment to thank everyone that has supported me & Jamie’s Hope over the last few months. I am so blessed to have the family and friends (new & old!) that have stepped up to help in so many ways. Once again friends and family stepped up today and did all the hard work. My only contribution was our house, decorations (which I delegated), and I plugged in the food warming trays …..also cheered on the Texans from the couch!!!!! I hope everyone has a wonderful Thanksgiving & remember to cherish those who cherish you!...