Chemo Monday – Tuesday

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Finally leaving from chemo, crazy how busy MDA is after a holiday! Exhausted!! Time to head home & get some rest… Gotta be at the Jamie’s Hope office in the morning – we have events to prepare for! What is up with starvation after leaving md???? I get a steroid in my pre meds because I had toxicity of the lungs, wondering if it can kick in and make you hungry in such a small amount of time….. My luggage and I are getting in the car, yay!!!!! So almost got in trouble with my doctor again for bringing too much stuff again, but the bag is full of magazines I was going to leave at the MD library for the patients. I was supposed to go through them to get them organized for my drop off, but didn’t get to it. (Trying again on Wednesday)

Back again on Wednesday for another appointment. Have had some recent episodes where I took a step and could no longer move or walk at all. Almost fell apart at cvs when this continued to go on for about 20 minutes. One of my daughters school pta moms actually saw me while she was in the Starbucks line (memorial dr.) completely freeze in the middle of the parking lot and then a few minutes later after stretching limped my way in. She came inside and insisted in a nice way (not pushy at all) to help me with my shopping. I kept telling her I was fine and didn’t need help (was very worried I might of seemed rude), however I was really only seconds away from a complete crying breakdown and was trying to hold it in. For me this was a very scary moment since my tumor is very large and is all around my hip area and gluteal tissue. My thoughts at the time had me wondering if this is how it all starts for cancer patients when they can no longer walk. Thankfully it went away and I am walking fine :)

Night, night everybody!!! We also took me off of gemcitabine for now, thank god!!!!!!!!!!! ( due to severe side effects) I have been soooooo much better for about 2 weeks, but now am trying to get caught up on Jamie’s Hope and LiFE, lol :)

~ Jamie ~