Derby for a Cause 2013
Come adorned in your finest derby attire & join Jamie’s Hope at this extravagant Kentucky Derby viewing party to help raise funds for MD Anderson Cancer Center! This year’s event will be held from 3:00 to 7:00 on Saturday, May 4, 2012 at the Marque in City Centre. TICKETS include complimentary passed hors d’oeuvres & fabulous signature cocktails along with a spectacular event full of fun festivities! Guests of the Derby for a Cause event will enjoy watching the “Running of the Roses” on over a dozen state-of-the-art HD plasma TV’s while being entertained by the ever popular Jazz & Blues band, Terry & Blue Birds! And of course the evening wouldn’t be complete without wonderful door prizes, the unique Silent Auction items and contests including the ever popular Best Hat Contest for the ladies and Best Dressed for the men! Stay ’til the end for the newly added Fashion Show Finale!! Hosted by Style Current, the show will feature fashions from Festari for Men and Cakewalk Style Boutique. Accessories provided by Lilah Gabriel & Models provided by Time Talent Agency. So grab those derby hats & throw on the seersucker suits… it’s DERBY TIME! Pre-sale tickets $60 | $75 at the door (if available) PURCHASE TICKETS BELOW:...Chemo Monday – Tuesday
Finally leaving from chemo, crazy how busy MDA is after a holiday! Exhausted!! Time to head home & get some rest… Gotta be at the Jamie’s Hope office in the morning – we have events to prepare for! What is up with starvation after leaving md???? I get a steroid in my pre meds because I had toxicity of the lungs, wondering if it can kick in and make you hungry in such a small amount of time….. My luggage and I are getting in the car, yay!!!!! So almost got in trouble with my doctor again for bringing too much stuff again, but the bag is full of magazines I was going to leave at the MD library for the patients. I was supposed to go through them to get them organized for my drop off, but didn’t get to it. (Trying again on Wednesday) Back again on Wednesday for another appointment. Have had some recent episodes where I took a step and could no longer move or walk at all. Almost fell apart at cvs when this continued to go on for about 20 minutes. One of my daughters school pta moms actually saw me while she was in the Starbucks line (memorial dr.) completely freeze in the middle of the parking lot and then a few minutes later after stretching limped my way in. She came inside and insisted in a nice way (not pushy at all) to help me with my shopping. I kept telling her I was fine and didn’t need help (was very worried I might of seemed rude), however I was really...
Elton John Concert
Bucket List item down!! Elton John concert awesome...
Surprise Engagement
Bachelor Spoof – Adam Barnes & Cindy Gilmore (Jamie’s Hope Founder & Sister) http://www.youtube.com/watch?v=0aQLuUkGEIE&sns=em Congratulations to Adam Barnes & Cindy Gilmore, Founder of Jamie’s Hope. I am so grateful to have both of them in my life. When I made the decision last year that I wanted to start the foundation Jamie’s Hope, Adam & Cindy played a critical role in making it happen. As a sister, I can’t tell you how thankful I am that my sister finally found her true love. She truly found her soul-mate and I have never seen another couple more in love!!!!!!!! I feel our family is incredibly blessed that we will be adding not only Adam, who is a wonderful person but in addition he comes with a great family that we all absolutely love I wanted to share the proposal video, so incredibly romantic and funny at the same time!! We all played a role in the surprise which can be seen or shared with the youtube link. If you are a Bachelor fan you will love this Bachelor engagement spoof....
Shell Houston Open – Charles Howell III
Shell Houston Open – Charles Howell III Wednesday, March 27,...
Johnson Wagner – Shell Houston Open
Johnson Wagner
Players – Shell Houston Open
Tuesday – Shell Houston...
Shell Houston Open
Burnt TaTa’s!!!!!!!!!! Ouch Should have worn my sunscreen. ~...
Golf
Golf Lessons with Mark Moreno at Tour Academy today (3rd day of lessons)!!! Lots of practice ahead for me to get ready for the Jamie’s Hope Golf Tournament. On chemo break that we planned for our daughters spring break at JW Marriott Hill Country Resort in San Antonio. They are getting ready for the Valero Texas Open and it was cart path only and I survived! Feeling human again is wonderful!!!!! I am so thankful to have a break and have energy to take golf lessons and play...
Perry’s Valentine’s -bill pd. by Stranger / released from MD today!!
Today I was released from MD Anderson around 12:30!!! Cindy picked me up with just enough time to pick up valentine bags, get to the house and put them together. I made it to Mikala’s school Valentines party and was only a few minutes late, so didn’t miss anything!! For dinner, Garrick, Mikala and I went to Perry’s at Memorial City. One of the staff came over and asked us if we knew the guy that had been sitting next to us and we said no. He asked us if we were sure and we said we definitely did not know him. He told us that when the man closed his bill he paid for our entire bill!!!!!! Garrick and I were in complete surprise that a stranger would do something so nice, took everything in me to hold it together and not cry at the table We tried to see if any of the staff knew his name or who he was, we just wanted to say Thank you!!...
Fever again :(
Had fever last week after chemo, but this is the highest yet! Here we go again, 103.6 and headed to ER....
New Orleans / Superbowl
Garrick is BUSTED!!!!!!!!! Caught him in New Orleans with Mercedes having breakfast Haha, lol, I am actually out in disguise for fun for my birthday!!!! On break from chemo and feel great and back to being myself until the chemo gets me again on Monday. For my birthday Garrick got me Super Bowl tickets, which is what I wanted Enjoying every moment of feeling normal. Thank you to everybody for all of the birthday wishes...
Released!!
Released!! Had low blood pressure reading of 85/52 when I was asleep and they checked it again to make sure it was okay to go home and it was 98/62. Had breakfast, packed up and moved out Almost home. View from room Mikala watched all morning for...
Friday – MD Anderson Update – 2nd blood Transfusion
Energy today!!!!! Escaped from the room and went missing for an hour today Pushed my meds down with me, stopped by Jennifer Christie’s room to say hi and see how she was doing, went to the gift shop, ran my ankle over with the stupid pole thing that holds all the bags of medicine (ouch!!), stopped to check out Kim’s Center (for ages 15 to 30) which I am about to be to old for on February 1 Then back up to the 19th floor where I walked around and explored a little since I have been feeling better!!! My mom stayed the night with me last night and stayed with me all day, so dragged her with me for my adventure out of my hospital room Garrick and Mikala are now here for a little MD Anderson slumber party and I am receiving my 2nd blood transfusion. My mom left and picked up our puppy Zora in the pic below to puppysit, she was named after Toro ~Jamie Labs from this morning...
Updates from MD Anderson, Blood Transfusion, Visitors, Etc….
Had another fever of 102.7 around 4 am and they got my temp back down with Tylenol. Yesterday I had a temp of 103.1 and also had very low blood pressure off and on, so just trying to get everything back to normal and stable so I can get home. Had a blood transfusion this afternoon due to low hemoglobin levels. I am on all kinds of fluids and high dose antibiotics as well. Today is the first time in several days that I have been more awake and alert. Also, a few visitors ~ Jamie Getting my blood transfusion On the new floor (19th) at MD Anderson, super nice!!!! There is a couch for your guest that turns into a bed and they get their own tv. Lunch today!! Hospital food at MD Anderson is very good, think I always gain 5-10 lbs when I am here. Amanda stopped by today Mikala and my Mom watching the other tv in our room / awesome new guest area Garrick wearing his mask, also was sick Cindy and Adam pushing me into the ER on Monday night. Adam pushing our luggage ER on Monday night and released around 6 am Tuesday and ended up back at in the ER Tuesday evening and stayed in observation until Wednesday and then was admitted into the hospital. Cindy and Adam trying to sleep on the tiny couch in the ER...
Fever
Awesome, just took my temp and fever 101.1, been resting all day but started getting the chills a few hours ago and was thinking my head was hot Garrick is in bed with a fever too, so we are both down My Dad and Paulette came over today to help at the house thank god!!!!! Def needed them, the pic below is my dad taking our tree out, lol...
PET Scan Results, Update, Visited Jennifer at MD, Chemo
Haven’t blogged in a while, the last 2 months have been very challenging. I have noticed when I feel good I push myself to the point of exhaustion and then crash for days. The hardest thing I am trying to learn is to slow down and that I’m not superwoman anymore, lol. This is my most challenging struggle with cancer, since I hate laying in bed and sitting around and resting and not feeling productive. Hopefully, I can find a way to manage my energy better so I don’t have the down days where I can’t move at all. Next comes my PET scan results!! Last week was my off week from chemo, so the last 2-3 days I have felt like myself once again My PET scan was last Thursday and I received results yesterday before chemo. According to the scan my SUV went down on all tumors by a little and this was my first positive test result. The report stated “Mild Positive Response to Therapy”. After discussing this with my doctor we wanted to know what my long term goal is and if surgery is in my future. She said the goal is to get me to a baseline and if we can get there to try to switch me to less toxic therapies for long term. Surgery is nowhere in my future at this time, it is two dangerous and my disease is too advanced at this time for that to be an option. The ultimate goal is to get my disease under control where it’s not spreading, growing or active and then we hope...
Mission Angel Tree 2012
On a roll, Garrick doesn’t know it yet, but now he can be my twin...
Mission Angel Tree 2012
Getting Christmas Decor ready for tonight and just found my...Donate Here
Click the button below to make your contribution today!
