Chemo Monday – Tuesday

Finally leaving from chemo, crazy how busy MDA is after a holiday! Exhausted!! Time to head home & get some rest… Gotta be at the Jamie’s Hope office in the morning – we have events to prepare for! What is up with starvation after leaving md???? I get a steroid in my pre meds because I had toxicity of the lungs, wondering if it can kick in and make you hungry in such a small amount of time….. My luggage and I are getting in the car, yay!!!!! So almost got in trouble with my doctor again for bringing too much stuff again, but the bag is full of magazines I was going to leave at the MD library for the patients. I was supposed to go through them to get them organized for my drop off, but didn’t get to it. (Trying again on Wednesday) Back again on Wednesday for another appointment. Have had some recent episodes where I took a step and could no longer move or walk at all. Almost fell apart at cvs when this continued to go on for about 20 minutes. One of my daughters school pta moms actually saw me while she was in the Starbucks line (memorial dr.) completely freeze in the middle of the parking lot and then a few minutes later after stretching limped my way in. She came inside and insisted in a nice way (not pushy at all) to help me with my shopping. I kept telling her I was fine and didn’t need help (was very worried I might of seemed rude), however I was really...
Surprise Engagement

Surprise Engagement

Bachelor Spoof – Adam Barnes & Cindy Gilmore (Jamie’s Hope Founder & Sister) http://www.youtube.com/watch?v=0aQLuUkGEIE&sns=em Congratulations to Adam Barnes & Cindy Gilmore, Founder of Jamie’s Hope. I am so grateful to have both of them in my life. When I made the decision last year that I wanted to start the foundation Jamie’s Hope, Adam & Cindy played a critical role in making it happen. As a sister, I can’t tell you how thankful I am that my sister finally found her true love. She truly found her soul-mate and I have never seen another couple more in love!!!!!!!! I feel our family is incredibly blessed that we will be adding not only Adam, who is a wonderful person but in addition he comes with a great family that we all absolutely love I wanted to share the proposal video, so incredibly romantic and funny at the same time!! We all played a role in the surprise which can be seen or shared with the youtube link. If you are a Bachelor fan you will love this Bachelor engagement spoof....
Golf

Golf

Golf Lessons with Mark Moreno at Tour Academy today (3rd day of lessons)!!! Lots of practice ahead for me to get ready for the Jamie’s Hope Golf Tournament. On chemo break that we planned for our daughters spring break at JW Marriott Hill Country Resort in San Antonio. They are getting ready for the Valero Texas Open and it was cart path only and I survived! Feeling human again is wonderful!!!!! I am so thankful to have a break and have energy to take golf lessons and play...
Thank You Firestone

Thank You Firestone

Firestone had a grand opening at West Rd. and Beltway. We were a chosen nonprofit to receive a $500 donation!!! Thank you so much Firestone for supporting Jamie’s...
Sharing

Sharing

I came across this picture of my sister and Mikala. I just wanted to share. My sister is such a strong and beautiful woman! I love her so much...
Perry’s Valentine’s -bill pd. by Stranger / released from MD today!!

Perry’s Valentine’s -bill pd. by Stranger / released from MD today!!

Today I was released from MD Anderson around 12:30!!! Cindy picked me up with just enough time to pick up valentine bags, get to the house and put them together. I made it to Mikala’s school Valentines party and was only a few minutes late, so didn’t miss anything!! For dinner, Garrick, Mikala and I went to Perry’s at Memorial City. One of the staff came over and asked us if we knew the guy that had been sitting next to us and we said no. He asked us if we were sure and we said we definitely did not know him. He told us that when the man closed his bill he paid for our entire bill!!!!!! Garrick and I were in complete surprise that a stranger would do something so nice, took everything in me to hold it together and not cry at the table We tried to see if any of the staff knew his name or who he was, we just wanted to say Thank you!!...

A OK

Jamie is doing good. She is home from the hospital. A little tired but home!
Fever again :(

Fever again :(

Had fever last week after chemo, but this is the highest yet! Here we go again, 103.6 and headed to ER....
New Orleans / Superbowl

New Orleans / Superbowl

Garrick is BUSTED!!!!!!!!! Caught him in New Orleans with Mercedes having breakfast Haha, lol, I am actually out in disguise for fun for my birthday!!!! On break from chemo and feel great and back to being myself until the chemo gets me again on Monday. For my birthday Garrick got me Super Bowl tickets, which is what I wanted Enjoying every moment of feeling normal. Thank you to everybody for all of the birthday wishes...
Released!!

Released!!

Released!! Had low blood pressure reading of 85/52 when I was asleep and they checked it again to make sure it was okay to go home and it was 98/62. Had breakfast, packed up and moved out Almost home. View from room Mikala watched all morning for...
Friday – MD Anderson Update – 2nd blood Transfusion

Friday – MD Anderson Update – 2nd blood Transfusion

Energy today!!!!! Escaped from the room and went missing for an hour today Pushed my meds down with me, stopped by Jennifer Christie’s room to say hi and see how she was doing, went to the gift shop, ran my ankle over with the stupid pole thing that holds all the bags of medicine (ouch!!), stopped to check out Kim’s Center (for ages 15 to 30) which I am about to be to old for on February 1 Then back up to the 19th floor where I walked around and explored a little since I have been feeling better!!! My mom stayed the night with me last night and stayed with me all day, so dragged her with me for my adventure out of my hospital room Garrick and Mikala are now here for a little MD Anderson slumber party and I am receiving my 2nd blood transfusion. My mom left and picked up our puppy Zora in the pic below to puppysit, she was named after Toro ~Jamie Labs from this morning...
Updates from MD Anderson, Blood Transfusion, Visitors, Etc….

Updates from MD Anderson, Blood Transfusion, Visitors, Etc….

Had another fever of 102.7 around 4 am and they got my temp back down with Tylenol. Yesterday I had a temp of 103.1 and also had very low blood pressure off and on, so just trying to get everything back to normal and stable so I can get home. Had a blood transfusion this afternoon due to low hemoglobin levels. I am on all kinds of fluids and high dose antibiotics as well. Today is the first time in several days that I have been more awake and alert. Also, a few visitors ~ Jamie Getting my blood transfusion On the new floor (19th) at MD Anderson, super nice!!!! There is a couch for your guest that turns into a bed and they get their own tv. Lunch today!! Hospital food at MD Anderson is very good, think I always gain 5-10 lbs when I am here. Amanda stopped by today Mikala and my Mom watching the other tv in our room / awesome new guest area Garrick wearing his mask, also was sick Cindy and Adam pushing me into the ER on Monday night. Adam pushing our luggage ER on Monday night and released around 6 am Tuesday and ended up back at in the ER Tuesday evening and stayed in observation until Wednesday and then was admitted into the hospital. Cindy and Adam trying to sleep on the tiny couch in the ER...
Jamie Update

Jamie Update

Hi everyone. Jamie is doing okay. She was admitted to MDA and will stay till she’s better. Blood pressure and fever ok. She had a blood transfusion today bc her hemoglobin was low. Now it’s more rest and sleep for her. Amanda is hanging out with her this evening and trying to get a few things done for Jamie’s Hope. Got the golf tournament coming up right. Thanks again for all the thoughts, prayers, and kind words! -Cindy- (Jamie’s...

Update

Jamie is staying the night again. They went ahead and admitted her and will be in a room soon. My mom is now with her so I can go home and work :-/ her blood pressure is still on the low side. Fever is gone!!!!!!!!! They put her on super antibiotics so hopefully that will take of it. Thx again everyone for keeping her in your thoughts and prayers. It’s amazing how many people are her for her....
Jamie Update

Jamie Update

Hey everyone. This is Cindy. Just wanted to let you know how Jamie is doing. Most of you know we can into the ER with a fever on Monday night and went home after fluids and meds. Adam and I brought her back last night once we learned her fever was still high ranging 101.7 to 102. Also, Dr Tsimberidou wanted us to be safe and bring her in to check her white blood cell count which is ok. When we brought her in her temperature was 103 so I’m glad we came! Her calcium and magnesium were low too so they gave her some of that and fluids again. They were gonna let us take her home but we decided to stay and have them watch over her. Her blood pressure dropped and was in the low 80’s so they put her on a watch and we are still at th ER. Her blood pressure seems to finally be back up now! Bout to order some food and try to get her energy up. She is very very tired. Thank you for your prayers and thoughts. It’s comforting knowing people are in this with us. Love everyone. -Cindy- (Jamie’s...